Wednesday, November 17, 2010

November 15th Shreveport Appointment

Doc and I took Patrick to see Dr. Pressly on Monday. We waited three hours in the waiting room and then he spoke with us for an hour. It was a very long afternoon and Patrick was wonderful.
· Begin Zinc, Vitamin C and antibacterial hand sanitizer to help prevent the number of viral infections
· Keep a record of Patrick’s temperature for a week. Take temp. if he complains of joints hurting and keep a record.
· Discuss with pediatrician the possibility of Cortizone Steroids with next illness to see if it corrects the illness within the same day instead of antibiotics
· One possible answer is that Patrick has something rare or unique that has not been described
· Dr. Pressly will be happy to follow up every 2-4 months and continue to repeat blood work
· Look for large red raised circle rash, swollen tender and red joints, Salmon colored rash and document if they occur
Leaning towards diagnosing:
1. Mild Immune Deficiency
2. Systemic Rheumatoid Arthritis
3. Auto Inflammatory Disease (12 different types)

November 23rd Dr. Pressly called. He gave us a prescription start Colchicine daily and see him again in January. The side effects of Colchicine are stomach cramps and diarrhea. Patrick began the new medicine on Wednesday, Nov. 24th. Wednesday evening we enjoyed Thanksgiving Dinner with Gramps and G.G. Patrick was running a low fever and it continued through Friday.

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